My CDKL5 Journey
In 2014 CDKL5 UK were awarded a National Lottery grant from the “Awards for All” programme. The project title was “CDKL5 Education” the grant was to cover the re-design of our website, but also for a series of educational resources. One such resource was the “My CDKL5 Journey” folders. The folders resemble a health and social care passport. It…