CDKL5 Collaboration
CDKL5 UK Chairperson, Carol-Anne Partridge and trustees, Sarah Skillicorn and Shelley Ashton met with Paula Connolly, trustee of CDKL5 Ireland this weekend. The aim of the visit was to meet with another Organisation that is working in the field of supporting families living with another rare disease, Niemann Pick, in order to share experiences of…