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    • Resources
      • Symptoms
        • A-Z of Symptoms – A Quick Guide
        • Gastro & Gut problems
        • Management of Epilepsy
        • Visual Impairment
      • Living with CDKL5 deficiency
        • Preparing for Transition
        • Health, Social Care and Education
        • Benefits, Grants and Financial Support
      • Treatment
        • Dietary Therapies for Epilepsy
        • Vagus Nerve Stimulation
        • CDKL5 Clinical Trials
        • Adolescents
      • Therapies
        • Therapy
        • Eye gaze
        • Music Therapy
        • Spider Therapy
        • Intensive Interaction
        • Sensory Processing
        • Crying Episodes and Pain
      • For Professionals
        • Download of Guide For Professional
        • Rare Disease Collaborative Network (Cdkl5) Information
        • CDKL5 Alliance
      • Other useful links
        • Downloads
        • Charity List
        • CDKL5 Centre of Excellence in Bristol




CDKL5 UK


    MENUMENU
    • About Us
      • Our Mission
      • Trustees
      • Scientific Advisory Group
      • Contact us
    • What is CDKL5
      • CDKL5 Description
      • History of CDKL5
      • Research
        • Clinical Trials
        • Latest Research
        • Grants for Professionals
        • Research explained
      • Genetics of CDKL5
    • CDKL5 Cast
      • CDKL5 News
      • Videos
    • Get Involved
      • Fundraising
        • Leave a gift in your Will
        • Make A Donation
      • Corporate Support
      • International CDKL5 Patient Registry
      • CDKL5 UK UNITE
    • Resources
          • Symptoms

          • A-Z of Symptoms – A Quick Guide
          • Gastro & Gut problems
          • Management of Epilepsy
          • Visual Impairment
          • Living with CDKL5 deficiency

          • Preparing for Transition
          • Health, Social Care and Education
          • Benefits, Grants and Financial Support
          • Adolescents
          • Treatment

          • Dietary Therapies for Epilepsy
          • Vagus Nerve Stimulation
          • CDKL5 Clinical Trials
          • Therapies

          • Therapy
          • Eye gaze
          • Music therapy
          • Spider therapy
          • Intensive interaction
          • Sensory Processing
          • Crying Episodes and Pain
          • For Professionals

          • Download of guide for professional
          • Rare Disease Collaborative Network (CDKL5) information
          • CDKL5 Alliance
          • Other useful links

          • Downloads
          • Charity List
          • CDKL5 Centre of Excellence in Bristol
    • Resources
      • Symptoms
        • A-Z of Symptoms – A Quick Guide
        • Gastro & Gut problems
        • Management of Epilepsy
        • Visual Impairment
      • Living with CDKL5 deficiency
        • Preparing for Transition
        • Health, Social Care and Education
        • Benefits, Grants and Financial Support
      • Treatment
        • Dietary Therapies for Epilepsy
        • Vagus Nerve Stimulation
        • CDKL5 Clinical Trials
        • Adolescents
      • Therapies
        • Therapy
        • Eye gaze
        • Music Therapy
        • Spider Therapy
        • Intensive Interaction
        • Sensory Processing
        • Crying Episodes and Pain
      • For Professionals
        • Download of Guide For Professional
        • Rare Disease Collaborative Network (Cdkl5) Information
        • CDKL5 Alliance
      • Other useful links
        • Downloads
        • Charity List
        • CDKL5 Centre of Excellence in Bristol

Daily Archives: March 3, 2017

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Rare Disease Day – Glasgow University

Events & FundraisingBy CDKL5 UKMarch 3, 2017

The last day of February each year is International Rare Disease Day, a day to raise awareness with policy makers and the public of rare diseases and of their impact on the lives of patients. We’ve never had an event in Glasgow linked to Rare Disease Day, and through the New Initiatives Fund at Glasgow…

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