Get your Rare Patient Health & Care Passport
We’re delighted to join the growing global network of patient groups partnering with CamRARE to bring you their ‘This Is Me’ Rare Patient Passport. CamRARE have worked with families and clinicians to create a new, fillable, personalised Health & Care Passport to help you communicate key medical and care information, including what CDKL5 Deficiency Disorder is, when you are…
