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CDKL5 UK


    MENUMENU
    • About Us
      • Our Mission
      • Our Policies
      • Partnerships
      • Meet the Team
        • CDKL5 UK Board of Trustees
        • CDKL5 UK Staff
    • News
      • CDKL5 UK News
      • CDKL5 Hub
      • Videos
    • What is CDKL5
      • Research
        • Clinical Trials
        • Latest Research
        • Grants for Professionals
        • Research explained
      • CDKL5 Description
      • History of CDKL5
      • Genetics of CDKL5
    • Get Involved
      • Fundraising
        • How to raise money for CDKL5 UK
        • Leave a gift in your Will
        • Donate Now
        • Corporate Support
      • Research
        • CDKL5 Research Champions
        • PPI Toolkit for Researchers
        • International CDKL5 Patient Registry
      • CDKL5 UK Unite
    • Support
      • Family Support
      • A-Z of Symptoms – A Quick Guide
      • CDKL5 Centre of Excellence in Bristol
        • Database CDKL5 Centre of Excellence Bristol
    • Contact Us
      • Contact us
      • Sign up

Daily Archives: July 24, 2025

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CDKL5 Awareness Month: A Resounding Success Thanks to Our Unwavering Community

UncategorizedBy BethanJuly 24, 2025

June has once again concluded, marking another powerful CDKL5 Awareness Month, a crucial period where our united community shines an even brighter light on CDKL5 Deficiency Disorder (CDD). This past month served as a profound reminder of the resilience, dedication, and unwavering hope that defines us, families living with CDD, as we collectively drive forward…

Back in Rome: A Powerful Look at the CDKL5 ALL IN(VOLVED) 2025 Conference

UncategorizedBy BethanJuly 24, 2025

Science: Breakthroughs in Small Molecule Drugs Significant progress was shared on new treatments for CDD, particularly in anti-seizure medications: Ganaxolone’s Journey: From a small trial with four patients in 2017 to becoming the first approved drug for CDD in the US and Europe, ganaxolone’s journey is a powerful testament to rapid progress when looking back.…

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