We are proud to be members of the CDKL5 Alliance, a new group that formed in Rome at the 2017, 4th International Congress for CDKL5 Research.
The aim of the alliance is to create a membership organisation which would raise awareness of the condition among the medical, scientific and pharmaceutical communities, whilst ultimately supporting our children and families, creating a “perfect alliance.”
With more people being diagnosed with CDKL5 deficiency around the world the time has come to join together. Currently we are one of 14 international patient groups who are working together to fundraise and support vital research into this condition.
Visit the Alliance website to find out more.