There are a number of dietary treatments which are used to help with the management of epilepsy.
The ketogenic diet, a high-fat diet designed to mimic starvation and has been used for the treatment of epilepsy for over eighty years.
Many children with CDKL5 have tried the ketogenic diet, some has had very good responses, although the prevalence of those that have achieved seizure free has been relatively small. However, having said that parents have reported few seizures, an increase in awareness and a better quality of life.
CDKL5 UK has worked closely over the years with Matthews Friends, the Ketogenic Diet Therapies charity in the UK. There are a number of directories which are currently in use: