Guide for Professionals

In collaboration with other CDKL5 foundations, and Professor Angus Clarke and Dr Hayley Archer from the Institute of Genetics, University Hospital of Wales. We have prepared the “CDKL5 – A Guide for Professionals”.  It is full of information about CDKL5, how to recognise and diagnose, as well as an A-Z symptoms of symptoms; seizure treatments and other therapeutic interventions that might help a child or adult living with CDKL5.
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Printed copies are available free of charge. If you require copies please email Carol-Anne Partridge at with the quantity you require.