Vagus Nerve Stimulation
For most children and adults with CDKL5 their epilepsy does not respond to medication. This is known as refractory or intractable epilepsy. It is becoming more common for these patients with CDKL5 to have a Vagus Nerve Stimulator. The youngest patient our support groups have known to have the procedure is 9 months of age. The average age of children that are currently undergoing the surgery is between 3-5.