- CDKL5 UK

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CDKL5 UK

Hope Love Cure

MENUMENU

About Us
What is CDKL5
CDKL5 Cast
- CDKL5 News
- Videos
Get Involved
Resources
- - - Living with CDKL5 deficiency
    - Preparing for Transition
    - Health, Social Care and Education
    - Benefits, Grants and Financial Support
    - Adolescents
- - - For Professionals
    - Download of guide for professional
    - Rare Disease Collaborative Network (CDKL5) information
    - CDKL5 Alliance
  - - Other useful links
    - Downloads
    - Charity List
    - CDKL5 Centre of Excellence in Bristol
Resources

MENUMENU

About Us
What is CDKL5
CDKL5 Cast
- CDKL5 News
- Videos
Get Involved
Resources
- - - Living with CDKL5 deficiency
    - Preparing for Transition
    - Health, Social Care and Education
    - Benefits, Grants and Financial Support
    - Adolescents
- - - For Professionals
    - Download of guide for professional
    - Rare Disease Collaborative Network (CDKL5) information
    - CDKL5 Alliance
  - - Other useful links
    - Downloads
    - Charity List
    - CDKL5 Centre of Excellence in Bristol
Resources

CDKL5 UK Registery

Name person with CDKL5 *

Date of Birth *

Gender *

Female
Male
Prefer not to say

Information about the patient and mutation *

Your Name *

First

Last

Email *

Phone

Where do you live *

Your relation to the person with CDKL5 *

Mother
Father
Legal Guardian
Carer
GP or Specialist

How did you find the registry

Google
GP/Specialist
Other parents

Can we share your details with other relevant organisations *

I give permission to share my details with other CDKl5 organisation
No

GDPR

I have read and agree to the GDPR
No

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