CDKL5 UK has launched CDKL5 Unite which is an online registry to collect information about persons in the UK with CDKL5. This gives us the opportunity to give you up to date information about the latest developments in research in CDKL5, Clinical trials and any new treatments.
The information that you will provide will also enhance the research about CDKL5 in the UK and worldwide, though any information will be share anonymous with any other organisations medical or cdkl5 related.