New video technology service via vCreate!

CDKL5 UK is delighted to share with you that due to a grant from Orion Pharma, we have been able to purchase a secure video technology service via vCreate.  This is an online platform and will be used in the CDKL5 Centre of Excellence in Bristol Children’s Hospital to connect patients, families and clinicians for improved diagnostic management and enhanced care.

It is a UK NHS trusted application and will be used not only for CDKL5 patients but to also support children with other neurological conditions.  It is hoped that this video platform will be available to all families who are registered with the CDKL5 Centre of Excellence from September. We would like to thank Orion Pharma, and the CDKL5 Centre of Excellence for their continued support of our families.